Saturday, April 8, 2017

April 8, 2017: Day+138

We Are Better Together

Today was the Boise MS Walk.  Doug and I were there in Spirit.  We really wanted to go.  But even though we were tempted, better sense won out.   Transferring seats let alone in and out of the car is really hard for Doug, driving in and out of Boise takes about 80 minutes and then of course there is the walk.   That would be way more than Doug has done and so we had to just hope that it was a great success.  I know that we had several friends marching in their St. Stephen's stomps out MS t-shirts. We are really thankful for all who walked and donated to this important cause. Hopefully with the research that is sponsored by the MS society the world will be free of MS. We loved the theme too, "We Are Better Together".  Surely we have learned this in our life.  I want to take this moment too to remember all our friends with MS and their families.  We surely are better together and are grateful to walk this walk together. We love you all and are especially grateful for our Mexico group.

Today was really a pretty good day for us.  We only had one appointment with a medical social worker.  The good news from that appointment is that we learned that there are 10 hours a month of respite care available for us.  That means that if I need a break that there is some help available.  The service is at no cost to us.  The social worker will meet with us next week to help us fill out the paperwork for the service. We also learned that if Doug is not continuing to make progress, she can help with a referral back to a rehab facility.  While I hope he will continue to progress at home it is nice to hear that we may have a safety net. The meeting turned out to be very worth while.

Doug had a pretty good morning.  He was able to get his shirt on by himself.  He also was able to transfer from the bed to his wheelchair with minimal support from me and from his wheelchair to the recliner.  He made himself a latte with our espresso maker and brushed his teeth at the sink.  He is making progress.  He was much more tired this afternoon and evening and needed a lot more support. But we both felt good about this morning and see what he could do helped to believe in his continued progress at home.

Tonight Julie and her family brought us over a delicious dinner.  It was wonderful to have home cooking and so nice to have one less thing to do.  We sat down and really enjoyed the meal.  Thank you Julie, Michael, Elenore and Maria! We are so grateful.

And so we pray.

Holy God,  we are thankful for the goodness of others.  Today we are especially grateful for eveyone committed to raising money for continued research to wipe out MS.  We pray that one day no one will suffer from this disease.  We also thank you for the help and support of others.  We are especially thankful for the help offered by Shannon our new social worker and for the Straight family, for giving of their time and talents to provide us a delicious dinner during this time of change and new challenges that we are presented with.  Amen

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