Our Mexican Camino: Ending MS and Finding New Life: April 10, 2017: Day +140

Monday, April 10, 2017

April 10, 2017: Day +140

As my friend Karen Hernandez has said, "Today was a red letter day". Everything went according to plan. This morning I helped Doug get up, cleaned up and dressed. He was able to help me and then use the slider board to get into his wheelchair. He brushed his teeth on his own. Then I was able to get a shower and dressed for work followed by answering a few phone calls and sending a couple emails. Then I made Doug lunch and was ready to go by noon.

At noon Will came to be with Doug, followed by his new OT at 1:00 and the PT at 2:00. Everything seemed to go very well. Will was able to watch all the therapies so that he can help Doug with them on the days that the therapists are not here. Doug said that the PT helped him to a stand and he was able to take a few steps. His OT said she was going to figure out a way for him to shower. We look forward to hearing her ideas. Doug seemed pretty relaxed tonight. I think it was good for both of us to know that the plan for having everyone come to help him went well. Tomorrow will be a different schedule. Instead of starting at noon it will start with a bath aide coming at 7:30, about the time I am going to work. That will be another new adventure.

Tonight we give thanks for a safe and successful day.

Merciful God, we give thanks for the mercies of this day, for Will and the therapists who came as scheduled and helped Doug to continue to gain skills and for my superintendent allowing me to change my schedule so that we could arrange for the best care for Doug, that is affordable for us. While our days have changed so much we are thankful for the last few days that have allowed us the time to figure out how to care for Doug in our home. We give thanks for the good friends who have encouraged us through all these changes. We give thanks for all who have held the Christ light for us when we have been afraid. Be near to us in the next few days as we continue to find our way with all the changes in our lives as we continue to seek wellness and healing for Doug. Amen

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About Doug

Fr. Doug Yarbrough was diagnosed with Multiple Sclerosis in 2008. Although judging from his MRI scans he probably had it for many years prior to his diagnosis. Since the diagnosis he has experienced continuous progression of the disease resulting in more and more disability.

Today he is dependent on an electric wheelchair to get around outside of his home. At home he uses a walker to walk short distances. His eyes loose focus easily and he cannot read. This is difficult for someone who has always been a voracious reader and life long learner. He experiences extreme fatigue. Most days it is all he can do to just take care of his own personal needs. We are grateful he can do that and fear the day that he will loose these skills. But with the progression of this disease that day may not be far off.

This is not the person Fr. Doug has always been. Many will remember him as an active member of his family, church, community and state. He is an ordained priest in the Episcopal Church. As a priest and community leader he has been a passionate crusader working on behalf of the poor, the abused, the homeless and minorities. He has been a husband, a father and a grandfather. He has always been the person who helps others.

Fr. Doug is a learner and believes in education to serve the common good. He has a B.A. in Education and Philosophy, a Master's in Counseling and a Master's in Religion. He has a doctorate in Educational Psychology. His education nurtured his thirst for learning, to make God known to the world and to serve others in the example of Christ. His favorite Bible passage is from Micah 6:8. In the New English Language Version of the Bible it reads "He has told you, O man, what is good; and what does the LORD require of you but to do justice, and to love kindness, and to walk humbly with your God?" These words have framed his work in the church and the world.

In 2005 he was awarded the Canyon County Humanitarian Award for his contributions, care and concern for the most needy and marginalized people in Canyon County. He chaired the Nampa Shelter Coalition board and was on this board for many years. He also served for many years on the Nampa Family Justice Center and the Idaho State Domestic Violence Boards. He founded the Open Arms Baby Boutique in Nampa. This is a resource center for low-income women. The women earn points for prenatal and postnatal check-ups. They may then trade the points in for diapers, baby clothes, furniture, etc. He was on the "Success by Six" Treasure Valley committee. Fr. Doug served on the Mercy Hospital Ethics Board. All this he did while pastoring a church and serving on many church boards and committees.

After many years of service, Fr. Doug is now in need of your help. He is in the fight of his life to stop the progression of this horribly debilitating disease. Up until now, there has been little hope, but upon returning from a pilgrimage of prayer for healing we learned of a new stem cell treatment that some are calling a cure. This treatment is HSCT (Hematopoietic Stem Cell Transplant). Using this treatment the patient's own stem cells are harvested, then the patient's immune system is killed using chemotherapy and then the patient's own stem cells are transplanted back into their body. It works similarly to a reboot of a computer. The immune system is being rebooted. This treatment is in Clinical Trials in the United States, but in other places in the world it is being used as a treatment for MS. Worldwide data shows that more than 80% of MS patients receiving this treatment see an end to the progression of the disease and many see a reversal in disability. The brain is able to heal from the bodies own attacks on the myelin insulating sheath around that surrounds nerve fibers

Unfortunately HSCT treatment is expensive and not yet covered by insurance. To get this treatment he will have to travel outside of the country. To help pay for this treatment family and friends of Father Doug are raising money to help pay for uninsured medical expenses associated with HSCT (HEMATOPOIETIC STEM CELL TRANSPLANT) to halt the progression of his Multiple Sclerosis. We don’t have time to wait for Clinical Trials in the US. Fr. Doug is rapidly progressing in disability from this disease. We have to act now if we are to save and hopefully improve the quality of Fr. Doug’s life. We have a goal of October 15, 2016 to raise all the money needed. This is the earliest possible date that the treatment may be available.

Fr. Doug has chosen to fund-raise with HelpHOPELive in part because HelpHOPELive assures fiscal accountability of funds raised and tax deductibility for donors. Donors can be sure that funds donated will be used only to pay for unreimbursed medically related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Donate Now button.

For more information, please contact HelpHOPELive at 800.642.8399.

Thank you and God Bless you for your help!

Monday, April 10, 2017

April 10, 2017: Day +140

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