Today Doug demonstrated more new skills. He was able to transfer from the bed to the wheelchair with no slide board this morning. This is his easiest transfer because the wheelchair is only slightly lower than the bed. He is helping with dressing which means getting up in the morning is much faster. Then this afternoon when Doug was transferring in and out of the car he was able to move more of his body on his own. I had to do much less lifting of his hips to get him onto the slide board and he was able to do more of the sliding on his own. He seemed more confident in his ability to move himself.
Doug had a doctor's appointment this afternoon with his primary care doctor. I called her when Doug was in the hospital at Christmas and she came over to visit him. Doug has been seeing her for 20 years now. She was really glad to see Doug today and so glad that he looked so good. It is really nice to be under her care again. She really cares about Doug and knew him before the MS. She is very supportive of the stem cell transplant. She is willing to help us to get the next treatments that Doug needs. We need to find a hematologist to do the retuximab infusions. Retuximab is a chemo drug that is used to reduce or eliminate the T and B cells that carry the memory of M.S. She is going to do a referral for Doug to a local hematologist. We hope this will work out. It is nice to have her support. Many people are having trouble finding hematologists willing to do the treatment since the procedure is still in clinical trials.
After Doug's appointment we went out for Thai food. Doug loves Thai food and so this was a real treat. It was a delicious lunch/dinner and a great outing. Each day we get closer to normal, our normal.
And so we pray:
Merciful God, we thank you for the care and support of so many caregivers, therapists, and doctors who have been a part of our journey. We thank you for continued support as we continued to move forward trusting in your goodness in the world. Be with us now as we look for a hemotologist to provide for Doug's continued treatment to assure that his M.S. progression has been stopped and his body may continue to heal. In your name we ask it. Amen
I found this blog after a long time which is really helpful to let understand different approaches. I am going to adopt these new point to my career and thankful for this help.
ReplyDeleteเสื้อเด็กโต