Our Mexican Camino: Ending MS and Finding New Life: April 12, 2017: Day +142

Wednesday, April 12, 2017

April 12, 2017: Day +142

Today started about the same as yesterday. Our provider we hired to help get Doug up and get him breakfast, from a private company, did not show up until 7:45. So things were a little frantic this morning. I was calling the agency when she knocked on the door. She said she was coming from Star and got pulled over on the way. The plus side is that she did show up. The down side was that she was late on her first day with us. She was very apologetic and Doug did like her. Later in the day the RN who is the case manager came over to the house and reviewed Doug's health plan with us and talked to us again about what happened. She said that the company policy is for the employee to call the company if he or she is going to be late and they will send someone else until the person is able to get there. And so we will see how tomorrow goes.

Doug had physical therapy with Kerry today. He said the high point was that he was able to stand for 90 seconds. While that does not seem like a long time to him it was a step in the right direction. Afterall he was standing!

Tonight, our friend Penny brought us a delicious dinner. We enjoyed Cornish hens, stuffing, salad and beans. It was was so thoughtful. It was nice to sit down together to a very nice dinner. Thank you so much Penny!

Bedtime routines are getting easier or I am getting stronger. I am sure we are building confidence in accomplishing everything we need to do to get Doug ready for bed. I don't think I will need to cover the carpet so the Hoyer moves more easily. I think I have a system down that keeps me from breaking a sweat. Either that or I am building muscle. :)

Let us Pray:

Hold God, we give thanks for all our friends who continue to encourage us as we grow into these new routines. We are thankful for the team members in the agencies we are working with that are willing to help out when thing go wrong. Be with us this night that we may rest in peace and awake tomorrow refreshed and ready for a new day. Amen

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About Doug

Fr. Doug Yarbrough was diagnosed with Multiple Sclerosis in 2008. Although judging from his MRI scans he probably had it for many years prior to his diagnosis. Since the diagnosis he has experienced continuous progression of the disease resulting in more and more disability.

Today he is dependent on an electric wheelchair to get around outside of his home. At home he uses a walker to walk short distances. His eyes loose focus easily and he cannot read. This is difficult for someone who has always been a voracious reader and life long learner. He experiences extreme fatigue. Most days it is all he can do to just take care of his own personal needs. We are grateful he can do that and fear the day that he will loose these skills. But with the progression of this disease that day may not be far off.

This is not the person Fr. Doug has always been. Many will remember him as an active member of his family, church, community and state. He is an ordained priest in the Episcopal Church. As a priest and community leader he has been a passionate crusader working on behalf of the poor, the abused, the homeless and minorities. He has been a husband, a father and a grandfather. He has always been the person who helps others.

Fr. Doug is a learner and believes in education to serve the common good. He has a B.A. in Education and Philosophy, a Master's in Counseling and a Master's in Religion. He has a doctorate in Educational Psychology. His education nurtured his thirst for learning, to make God known to the world and to serve others in the example of Christ. His favorite Bible passage is from Micah 6:8. In the New English Language Version of the Bible it reads "He has told you, O man, what is good; and what does the LORD require of you but to do justice, and to love kindness, and to walk humbly with your God?" These words have framed his work in the church and the world.

In 2005 he was awarded the Canyon County Humanitarian Award for his contributions, care and concern for the most needy and marginalized people in Canyon County. He chaired the Nampa Shelter Coalition board and was on this board for many years. He also served for many years on the Nampa Family Justice Center and the Idaho State Domestic Violence Boards. He founded the Open Arms Baby Boutique in Nampa. This is a resource center for low-income women. The women earn points for prenatal and postnatal check-ups. They may then trade the points in for diapers, baby clothes, furniture, etc. He was on the "Success by Six" Treasure Valley committee. Fr. Doug served on the Mercy Hospital Ethics Board. All this he did while pastoring a church and serving on many church boards and committees.

After many years of service, Fr. Doug is now in need of your help. He is in the fight of his life to stop the progression of this horribly debilitating disease. Up until now, there has been little hope, but upon returning from a pilgrimage of prayer for healing we learned of a new stem cell treatment that some are calling a cure. This treatment is HSCT (Hematopoietic Stem Cell Transplant). Using this treatment the patient's own stem cells are harvested, then the patient's immune system is killed using chemotherapy and then the patient's own stem cells are transplanted back into their body. It works similarly to a reboot of a computer. The immune system is being rebooted. This treatment is in Clinical Trials in the United States, but in other places in the world it is being used as a treatment for MS. Worldwide data shows that more than 80% of MS patients receiving this treatment see an end to the progression of the disease and many see a reversal in disability. The brain is able to heal from the bodies own attacks on the myelin insulating sheath around that surrounds nerve fibers

Unfortunately HSCT treatment is expensive and not yet covered by insurance. To get this treatment he will have to travel outside of the country. To help pay for this treatment family and friends of Father Doug are raising money to help pay for uninsured medical expenses associated with HSCT (HEMATOPOIETIC STEM CELL TRANSPLANT) to halt the progression of his Multiple Sclerosis. We don’t have time to wait for Clinical Trials in the US. Fr. Doug is rapidly progressing in disability from this disease. We have to act now if we are to save and hopefully improve the quality of Fr. Doug’s life. We have a goal of October 15, 2016 to raise all the money needed. This is the earliest possible date that the treatment may be available.

Fr. Doug has chosen to fund-raise with HelpHOPELive in part because HelpHOPELive assures fiscal accountability of funds raised and tax deductibility for donors. Donors can be sure that funds donated will be used only to pay for unreimbursed medically related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Donate Now button.

For more information, please contact HelpHOPELive at 800.642.8399.

Thank you and God Bless you for your help!

Wednesday, April 12, 2017

April 12, 2017: Day +142

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