Today Doug's doctor called him. She had talked to the hematologist. The hematologist is asking to talk to a neruologist that can attest to the benefit of the retuximab infustions after HSCT. Our hematologist is not willing to do this. And so I just posted to an HSCT group on FB to see if someone has a neurologist who would be willing to talk to our hematologist. If anyone reading this blog has a neurologist who would be willing to talk to him I would really appreciate hearing from you.
It seems a little crazy to me that the hematoligist will not just contact Dr. Ruiz so that Dr. Ruiz can share the research he has done and the reasons for the retuximab infusions. There is some research on the internet that shows the effectiveness in clinical trials that are being run and George Goss, a well informed person who has been through HSCT for his own MS has sent me a link from the University of Massechusetts speaking in favor of using Retuximab for MS. I wish all of this was not so difficult. It seems like everyday there is another mountain to climb.
Please join us in prayer:
God of Strength, be with us as we try to scale this next mountain. Help us to find the resources we need to convince our hematologist that the retuximab infusions are safe, necessary and helpful. Strengthen our resolve to see this through. Shed light on our path, help us to discern our next steps. In your name we ask it. Amen
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