Doug's PT Kerry told us that she wants Doug to be doing more. She wants him to get up and get more activity. Doug is worried. While he is moving a lot more more and gaining some independence, movement is still very hard for him. It takes a lot out of him and it is hard work. Sometimes he just does not want to work that hard. The electric wheelchair has really become his friend because it gives him so much independence. Now having to move on his own, his fear of falling and the concentration and strength it reguires can be overwhelming for him. He is not sure he can move as much as Kerry wants him to.
And so we have set some new goals. Doug will use the electric wheelchair while I am gone. When I am home I will help him walk from place to place or he can use his manual wheelchair. In the evening when he is most tired he can go back to the electric wheelchair. Then in a couple weeks we will see if we can take the electric wheelchair away at night. And finally, by the first of August our goal will be to have Doug walking with the walker.
We did not get his results from the echocardiogram or any word yet on the Retuximab infusions. And so we continue to pray for good news.
God of Ordinary Times, we pray day by day, Doug will have the strength and courage to continue to practice each day, to push through the fears and the amount of work required of him to regain his ability to walk. And we pray that Doug's heart is getting stronger like all the muscles of his body. And we pray that his doctor will prescribe the Retuximab, so that we can put a stop to his MS forever. Amen
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