Our Mexican Camino: Ending MS and Finding New Life: November 10, 2016: Day -9

Thursday, November 10, 2016

November 10, 2016: Day -9

I decided to start naming the post the same as our day by day booklet we were given Monday. We were told that this would be our HSCT Treatment Bible. It gives us our daily schedule, diet, doctors and nurses responsible, location and medications. Today is Day -9. That means that we are 9 days until Doug is given his stem cells back and his immune system is rebooted. That day begins the day of Doug's recovery. That is the day that we pray his MS is stopped. Big Day!

Today we spent the whole day in the apartment, giving Doug an opportunity to recover from the last 2 days of chemotherapy. He is doing pretty well, with some stomach upset today and with symptoms worse this evening. We have had 2 visits from the doctors and nurse as scheduled in our apartment. Doug is now receiving 2 shots a day, 12 hours apart, to increase his stem cell count. This medication is called Filgrastim. He also began oral medications today to help with the side-effects of chemotherapy that he will be taking throughout the next week. These medications are Desamethasone, Ondansetron and Pantroprazole.

The doctor today assured us that what he is feeling is normal. Many of the other patients are having the same symptoms, with some having more distress. The doctor assured us he will feel better soon. I questioned if the chemo he will receive next week will be stronger. He said no, it will be the same. I was relieved to hear this. Doug is handling this level of distress fairly well. During the chemo treatments his blood pressure remained very good. It is up a little tonight. He has maintained normal body temperature so far.

While the side effects of the chemotherapy and the medications are not pleasant, we are reminded that this process is a road to recovery. We are hoping that the symptoms from chemotherapy will subside soon.

Holy One,we are grateful for the work of all the researchers and doctors who have developed this treatment. We give thanks for the tender care of our doctors and nurses here. We pray that Doug will feel better soon. Sustain his hope in this treatment and give him courage to face the days to come. In your name we ask it. Amen

1 comment:

UnknownNovember 10, 2016 at 8:40 PM
Thank you for the updates. Prayers are coming your way for continuing success and peace.
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About Doug

Fr. Doug Yarbrough was diagnosed with Multiple Sclerosis in 2008. Although judging from his MRI scans he probably had it for many years prior to his diagnosis. Since the diagnosis he has experienced continuous progression of the disease resulting in more and more disability.

Today he is dependent on an electric wheelchair to get around outside of his home. At home he uses a walker to walk short distances. His eyes loose focus easily and he cannot read. This is difficult for someone who has always been a voracious reader and life long learner. He experiences extreme fatigue. Most days it is all he can do to just take care of his own personal needs. We are grateful he can do that and fear the day that he will loose these skills. But with the progression of this disease that day may not be far off.

This is not the person Fr. Doug has always been. Many will remember him as an active member of his family, church, community and state. He is an ordained priest in the Episcopal Church. As a priest and community leader he has been a passionate crusader working on behalf of the poor, the abused, the homeless and minorities. He has been a husband, a father and a grandfather. He has always been the person who helps others.

Fr. Doug is a learner and believes in education to serve the common good. He has a B.A. in Education and Philosophy, a Master's in Counseling and a Master's in Religion. He has a doctorate in Educational Psychology. His education nurtured his thirst for learning, to make God known to the world and to serve others in the example of Christ. His favorite Bible passage is from Micah 6:8. In the New English Language Version of the Bible it reads "He has told you, O man, what is good; and what does the LORD require of you but to do justice, and to love kindness, and to walk humbly with your God?" These words have framed his work in the church and the world.

In 2005 he was awarded the Canyon County Humanitarian Award for his contributions, care and concern for the most needy and marginalized people in Canyon County. He chaired the Nampa Shelter Coalition board and was on this board for many years. He also served for many years on the Nampa Family Justice Center and the Idaho State Domestic Violence Boards. He founded the Open Arms Baby Boutique in Nampa. This is a resource center for low-income women. The women earn points for prenatal and postnatal check-ups. They may then trade the points in for diapers, baby clothes, furniture, etc. He was on the "Success by Six" Treasure Valley committee. Fr. Doug served on the Mercy Hospital Ethics Board. All this he did while pastoring a church and serving on many church boards and committees.

After many years of service, Fr. Doug is now in need of your help. He is in the fight of his life to stop the progression of this horribly debilitating disease. Up until now, there has been little hope, but upon returning from a pilgrimage of prayer for healing we learned of a new stem cell treatment that some are calling a cure. This treatment is HSCT (Hematopoietic Stem Cell Transplant). Using this treatment the patient's own stem cells are harvested, then the patient's immune system is killed using chemotherapy and then the patient's own stem cells are transplanted back into their body. It works similarly to a reboot of a computer. The immune system is being rebooted. This treatment is in Clinical Trials in the United States, but in other places in the world it is being used as a treatment for MS. Worldwide data shows that more than 80% of MS patients receiving this treatment see an end to the progression of the disease and many see a reversal in disability. The brain is able to heal from the bodies own attacks on the myelin insulating sheath around that surrounds nerve fibers

Unfortunately HSCT treatment is expensive and not yet covered by insurance. To get this treatment he will have to travel outside of the country. To help pay for this treatment family and friends of Father Doug are raising money to help pay for uninsured medical expenses associated with HSCT (HEMATOPOIETIC STEM CELL TRANSPLANT) to halt the progression of his Multiple Sclerosis. We don’t have time to wait for Clinical Trials in the US. Fr. Doug is rapidly progressing in disability from this disease. We have to act now if we are to save and hopefully improve the quality of Fr. Doug’s life. We have a goal of October 15, 2016 to raise all the money needed. This is the earliest possible date that the treatment may be available.

Fr. Doug has chosen to fund-raise with HelpHOPELive in part because HelpHOPELive assures fiscal accountability of funds raised and tax deductibility for donors. Donors can be sure that funds donated will be used only to pay for unreimbursed medically related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Donate Now button.

For more information, please contact HelpHOPELive at 800.642.8399.

Thank you and God Bless you for your help!

Thursday, November 10, 2016

November 10, 2016: Day -9

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