Our Mexican Camino: Ending MS and Finding New Life: Nov 3, 2016 Preparing to leave

Saturday, November 5, 2016

Nov 3, 2016 Preparing to leave

It is the day before we leave and there is still so much to do. I started the morning early getting a mammogram that was overdue because I have been to busy with work and preparations for Doug's stem was cell transplant. I am reminded of when my uncle did not attend to a mole because of taking care of his mom. And so I decided this was way to important to skip even if it did make the day a little more crazy. (reading this to Doug, he says that he also fussed at me).

Then off to work to meet with Vicki Hardin my administrative assistant and Earnie Lewis who will be filling in for me. Poor Earnie only got a few hours sleep after flying in from a vacation in China. Thank you Earnie for coming in and going over the balcony view of everything I have going on. Everyone will love having you there.

The rest of the day was filled with picking up prescriptions, new slippers for Doug, dog food for Stryder and the most important event, Doug's haircut. It is anticipated that Doug will loose his hair and so we decided to be preemptive and get his head shaved before it started falling out. We selected Lee Ortivez from Salon Che in Nampa because we knew he would take care for Doug's emotional response to getting his hair shaved and make it look good. And that he did. He decided not to shave it but to cut it very close and stylish! Thanks Lee for taking care of us! He looks good!

The rest of the evening is filled with finishing our packing, getting the house ready, garbage out and tending to our fish that our neighbor Karen has graciously agreed to feed at the last minute while we are gone.

I finally make it to bed around midnight, but cannot sleep I guess this adventure is just too big. My mind just keeps rolling. The alarm clock going off at 6:30 was just to early!

Every other blog I have kept I have ended the day with a lesson learned. I wonder how should I end each day. I think I will end with a prayer. It is only through grace that we are making this "Great Endeavor". So here goes...

Holy One, we give thanks for everyone who made this "Great Endeavor" possible. We thank you for giving us the courage to say yes, when your spirit invited us on this journey. Be with us as travel tomorrow and make the path clear for us. Amen

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About Doug

Fr. Doug Yarbrough was diagnosed with Multiple Sclerosis in 2008. Although judging from his MRI scans he probably had it for many years prior to his diagnosis. Since the diagnosis he has experienced continuous progression of the disease resulting in more and more disability.

Today he is dependent on an electric wheelchair to get around outside of his home. At home he uses a walker to walk short distances. His eyes loose focus easily and he cannot read. This is difficult for someone who has always been a voracious reader and life long learner. He experiences extreme fatigue. Most days it is all he can do to just take care of his own personal needs. We are grateful he can do that and fear the day that he will loose these skills. But with the progression of this disease that day may not be far off.

This is not the person Fr. Doug has always been. Many will remember him as an active member of his family, church, community and state. He is an ordained priest in the Episcopal Church. As a priest and community leader he has been a passionate crusader working on behalf of the poor, the abused, the homeless and minorities. He has been a husband, a father and a grandfather. He has always been the person who helps others.

Fr. Doug is a learner and believes in education to serve the common good. He has a B.A. in Education and Philosophy, a Master's in Counseling and a Master's in Religion. He has a doctorate in Educational Psychology. His education nurtured his thirst for learning, to make God known to the world and to serve others in the example of Christ. His favorite Bible passage is from Micah 6:8. In the New English Language Version of the Bible it reads "He has told you, O man, what is good; and what does the LORD require of you but to do justice, and to love kindness, and to walk humbly with your God?" These words have framed his work in the church and the world.

In 2005 he was awarded the Canyon County Humanitarian Award for his contributions, care and concern for the most needy and marginalized people in Canyon County. He chaired the Nampa Shelter Coalition board and was on this board for many years. He also served for many years on the Nampa Family Justice Center and the Idaho State Domestic Violence Boards. He founded the Open Arms Baby Boutique in Nampa. This is a resource center for low-income women. The women earn points for prenatal and postnatal check-ups. They may then trade the points in for diapers, baby clothes, furniture, etc. He was on the "Success by Six" Treasure Valley committee. Fr. Doug served on the Mercy Hospital Ethics Board. All this he did while pastoring a church and serving on many church boards and committees.

After many years of service, Fr. Doug is now in need of your help. He is in the fight of his life to stop the progression of this horribly debilitating disease. Up until now, there has been little hope, but upon returning from a pilgrimage of prayer for healing we learned of a new stem cell treatment that some are calling a cure. This treatment is HSCT (Hematopoietic Stem Cell Transplant). Using this treatment the patient's own stem cells are harvested, then the patient's immune system is killed using chemotherapy and then the patient's own stem cells are transplanted back into their body. It works similarly to a reboot of a computer. The immune system is being rebooted. This treatment is in Clinical Trials in the United States, but in other places in the world it is being used as a treatment for MS. Worldwide data shows that more than 80% of MS patients receiving this treatment see an end to the progression of the disease and many see a reversal in disability. The brain is able to heal from the bodies own attacks on the myelin insulating sheath around that surrounds nerve fibers

Unfortunately HSCT treatment is expensive and not yet covered by insurance. To get this treatment he will have to travel outside of the country. To help pay for this treatment family and friends of Father Doug are raising money to help pay for uninsured medical expenses associated with HSCT (HEMATOPOIETIC STEM CELL TRANSPLANT) to halt the progression of his Multiple Sclerosis. We don’t have time to wait for Clinical Trials in the US. Fr. Doug is rapidly progressing in disability from this disease. We have to act now if we are to save and hopefully improve the quality of Fr. Doug’s life. We have a goal of October 15, 2016 to raise all the money needed. This is the earliest possible date that the treatment may be available.

Fr. Doug has chosen to fund-raise with HelpHOPELive in part because HelpHOPELive assures fiscal accountability of funds raised and tax deductibility for donors. Donors can be sure that funds donated will be used only to pay for unreimbursed medically related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Donate Now button.

For more information, please contact HelpHOPELive at 800.642.8399.

Thank you and God Bless you for your help!

Saturday, November 5, 2016

Nov 3, 2016 Preparing to leave

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