Thursday, November 9, 2017

November 9, 2017: Day 354

I am behind on updates.  These last few weeks have been very busy. The kidney stone has taken a tole on Doug.  He is not having pain anymore however he just does not feel well.  His energy is limited.  This week we went back to the infectious disease doctor in Boise.  The good news is that the infection is no longer in his blood stream.  They removed the PICC line yesterday.  I no longer have to give him the antibiotic IV.  He is now on an oral antibiotic and will be until after the stone is removed.  Doug went back to the urologist last week.  He is scheduled for surgery to remove the stone on November 22, the day before Thanksgiving.  This will be an outpatient surgery.  Doug is very happy about that.  Hopefully he will be feeling well enough to enjoy Thanksgiving.

Since the kidney stone attack, the surgery, and sepsis, Doug has lost ground physically.  He has been getting physical therapy 2 days a week at home.  He tires easy and is weaker than before the attack.  I suppose the sepsis, is what has had the most impact on his health. And the stone still in there, continues to cause infection.

Today Doug had a neuropsychological evaluation at The Elks.  This was scheduled last spring at the time of his discharge.  I am not sure with Doug's recent illness that the results will be the most accurate.  Monday we had to go to Boise for an interview before the testing.   There have been changes in Doug's cognition with the MS.  For years I tried to talk to his neurologist and others about it.  But now, with all that happened to Doug last year, the doctors at the rehabilitation hospital thought it was important to do an assessment.  I don't really expect that we will learn any helpful information.  I think the testing was hard on Doug and discouraging.  He use to give these assessments.  Now his thinking and memory are slower.  It is frustrating for him.  When I picked him up he was a little down.

My sister took care of Trixie today, she hates being left alone.  And so Doug and I took advantage of having a dog sitter.  We went out for an early dinner/late lunch.  We celebrated having the testing over and looking forward to the surgery, so that the stone will be behind us.

We have been climbing a lot of hills or mountains lately.  Last week we had the opportunity, to see the documentary "I'll Push You".  It is the story of two friends, one who pushed the other for the entire 500 mile pilgrimage of the Camino de Santiago.  It was fabulous.  Patrick and Justin did the Camino 2 months before Angie and I walked it.  I joked with Doug then, "I won't push you".  The documentary was heartening on many levels.  It was a reminder of how important it is to have friends and acquaintances along the way, who are willing to jump in and help and support us.  As we are coming close to the 1 year mark since Doug received his new stem cells, we are reminded of all who have helped us along the way, and we are grateful.
At the documentary "I'll Push You" with Justin and Patrick

And so we pray:  God of the Camino, the path of life, often unpredictable, sometimes rocky, with places that are steep, offering new vistas, and places of desert, with long straight roads,  you are with us and you give us rest.  Be with us now with the challenge of Doug's recent illness.  Heal his body and give him strength.  Fill us with continued hope as we look forward to his 1 year birthday.  In your name we ask it.  Amen

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